A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos —- Scan result day and The CNS Nurses at Kent & Canterbury Hospital are now sitting comfortably
I had a phone call Monday to attend the Royal Marsden today at 10.15. my mind has been working overtime as I thought its got to be bad news or they could have talked to me on the phone. I got really negative and that’s not like me.
So we set off today and arrived thereat 10am. Ray settled down in the car and i went through the door having my temperature taken and a a badge put on me that I had been done.
I waited on my disc to keep me spaced out in the queue to the desk. I was given paperwork to have my bloods down.
The ticket said no 41 and the number on the wall was 14 OH dear!! but surprise! a nurse called my name.
Bloods taken and I went back to the waiting room but she had followed me and called me again to be taken to the waiting are for the Doctor.
I didn’t have time to panic.
The doctor told me my scan showed slight growth so what did I want to do. We had a long chat as there isn’t a trial to suit me. So we have decided I will have a scan every 3 months but to contact if I get any pain or lose of feelings in any part of my body as the Meso is on the spine where all the nervous system is. I could get pins and needles in arms or my back so just report anything what ever it is.
I can have radiotherapy so I said if needed I will have that at Kent and Canterbury but could I have scans at the Marsden so you don’t forget me. She assured me that wouldn’t happen but yes I will have a scan in January. I said I will just enjoy Christmas then.
So that was it I came away and shocked Ray when I opened the car door at 11am. But it was good news so we are happy.
When I got home Toni the Meso UK Nurse, that is sponsored by The Mavis Nye Foundation, messaged me over a lovely photo 
This has pleased me as I had helped her to replace their old chairs. She had turned to me as a charity.
I contacted Helen Childs of Royds Withy King Just to ask if they had any spare seeing as everyone was working from home. It was amazing that they had some spare from when they replaced theirs recently.
It was meant to be
Toni was thrilled and so were all the nurses bless them. They can now throw theirs out now.
Toni had also contacted Richard Mullins of LASAG as they wanted some more and they agreed to Donate so great that we as charities have been able to help out.
A huge thank you to Royds Withy King and LASAG together we have made the CNS’s very happy and they are sitting comfortably again at their new computers.
https://www.mavisnyefoundation.com/
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