A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos –Another Birthday has been reached and new glasses have been ordered,
I have been quiet since my last blog as I have to come to terms with the fact I wasn’t going on the Bayer trial and my eyes are damaged.
We immediately made an appointment for the Optician’s which we had to do on line and there were few appointments offered which meant I had to wait until yesterday to be sorted.
I have had a Birthday on the 27th Aug which was another zoom success and social media with almost £2000 donated to the charity which is brilliant and I thank everyone who was so generous. We will be able to do so much good with that and we have a meeting next week so we can make plans for the foundations work in 2021.
We have managed to get out and the world is so different.
Empty beaches where it would normally be so packed, but we did meet people walking their dogs or taking a stroll to get sea air in their lungs.
It was nice to sit and watch the sea from our favourite spot.
A neighbour got himself stuck in a hole much to our amusement he had come round the corner and drop into a hole and got beached on the wall.
He just left it and went indoors.
I think a neighbour had more than sea air in his body.
Ray had bought a birthday cake and hidden it in the shed overnight which surprised me as he had lit 4 big candles as well.
Family visited on Sunday so all in all it was a good birthday.
Then yesterday we parked in the park and ride, which had just opened again since March, and so was able to catch the bus into the city.
There wasn’t many people as the tourists from abroad were missing but lots of students from the Uni were enjoying the warm day. Some wearing face coverings and many not.
I had to shop in Boots the Chemist and we couldn’t find the entrance. The main one was all shut up so we came down the side and went in a door but that lead to the roof car park. Just a bit further on we found a door and was able to purchase things I wanted.
We sat on a bench in the fresh air until it was time to go into the Opticians.
We could choose frames but when we took them off they had to go into a little basket where the frames were then sanitised.
The Optician was very thorough and agreed with my Doctor I had very dry eyes and a damaged cornea, he was able to sell me good lubricant as he said the ones I was using had preservatives in so could do more damage.
I have chosen my new frames and paid a fortune for the new lenses and he recommends to wear sun glasses most of the time so I have bought wrap around ones that will go over my new glasses.
Ray then had his test and chose his glasses so it was a dear old day yesterday.
A phone call from my Doctor to say they cant find a trial for me yet as I have had so much treatment I don’t fit criteria’s. Dean Fennel has been contacted and he hasn’t anything for me, so my Doctor said can I wait until next week to let him keep searching. I don’t have a choice really do I.
I will do my own research again but will wait until next week.
So relaxing and enjoying the freedom from treatment and not panicking is the order of the day,
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