A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos — I havent passed for the New Trial Boo Hoo!! so What next.

 

 

 

 

 

 

 

Woke up to a windy day yesterday but we arrived on time at the Royal Marsden where I was booked in for a long day of tests for passing me to the Bayer Trial. I thought it would be easy–Wrong.

I had my bloods taken and put into so many little tube.

I had to do a Covid 19 swab and a swab for anal virus, that is a new one as there is a virus that lives in your gut.

Then I saw the Doctor who went through my health and and past treatments. The taxi was coming to take me to Parkside Hospital Wimbledon Common for an eye test.

Ray was allowed to travel with me and wearing our masks we enjoyed the drive in a part of London we haven’t been in before.

Ray couldn’t come into the hospital so he found a bench to sit in the sun to wait for me.

I just had to sanitise my hands and wait in the waiting room.

The Doctor came out to meet me and showed me into his clinic where he told me it as exactly a year to the day when he had examined my dry eyes while I was on Keytruda.

He put the drops in and I sat outside for half an hour then went back in where the light was put on my eyes and he could examine all the eye,

He said my eyes were as dry as the dessert and to my spray more times in a day. That’s all he said and i was allowed to go back to the RM.

Ray went back to the car and I came into the hospital where I went back to Oak ward.

I was weighed and vital signs checked and then waited to go to St Anthonys Cheam for Ehocardardiogram.

Ray came again and he sat out on a bench where he fell asleep and a nurse was worried about him, Ray said he thinks she thought he had died as she quietly asked if he was Ok. It even rained so he stood in the bike shed. poor Ray his day was different to mine.

I had to follow the red markings (no not the yellow brick road, The red one.

This took me around to the back of the hospital where I had to ring the door bell.

I was let in and then a really nice friendly man took my temperature with a huge box that I was standing by. I had to remove my mask and he gave me a new one.

The Clinic wasn’t ready for me so I was sat in Isolation in a room as I had come from the RM a Cancer hospital.

He chatted away with me so I didn’t feel lonely.

Thetechnician (sonographer) came and escorted me to her room where she spreads gel on a device (transducer). The sonographer presses the transducer firmly against your skin, aiming an ultrasound beam through your chest to your heart. The transducer records the sound wave echoes from your heart. to send back to the RM

She said when she looked at my name “No Way” as I was surviving so long with Mesothelioma. My Heart is so very strong so just keep on doing what you are doing.

I could go back to the RM so I followed the red markings back to find Ray and we got back in the taxi to the RM

I went back to Oak ward where I was then seen by the Doctor. I had passed everything with flying colours and I said could I have something more for my eyes.

He hadn’t seen the results to say my eyes were dry as the desert,

He phoned the Doctor I has seen there ad he said yes they are dry and this has damaged my Cornea. My Doctor said that is going to bar me from the trial as the drug that they use, radioactive thorum 227 can damage the eye so they have to be healthy.

He is going to hold a meeting Monday to clarify that but he said Im so sorry you wont be able to go on the trial.

My heart sank and I crumbled but me being me I put a smile on my face and said don’t worry we will find something else.

I went back to have my port unloaded and the nurses are as devastated as I was.

So that was it I came out found Ray and told him. We came home and bought fish and chips and a nice hot chocolate to consul ourselves.

Life get tedious doesn’t it . Lets see what Monday brings in the mean time I have to get new glass as the damage has hurt my eyesight. More tests!!!

 

 

 

 

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