A Diary of a Mesowarrior Living With #Mesothelioma #asbestos- A new trial to be signed for Friday and the crazy world of shopping –now I can shop.

 

 

 

 

 

 

 

Its been hot hot hot. Wonderful weather.

I was so very down last week. I have to get head around all what is going on. Locked up all year and still cant really go out like last year.

But I have pulled myself together and I will accept the Trial at the Marsden I have made my my mind up. My son has phoned today a he wants to know what I have decided’ I told him I have to fight on there is a battle to won again and he is now happy that I have decided and is encouraging me –I love that boy of mine xx

So Friday I will sign up Im just reading all through the paperwork that they have sent me.. I have been told that the side effects are a reaction as the drug goes in but if that happens they will give me drugs that will help and also your bloods can drop and you need a blood transfusion but that is rare. They monitor your bloods every week but you only have a Drug day once every 6 weeks. You have to have a Bi-op first to see if you fit the criteria The trial is for 20 patients The dose of Thorium-227 will start at 1.5 MBq and increase in steps of 1.0 or 1.5 MBq, with antibody doses of 10 mg.the anti body will target the tumour https://clinicaltrials.gov/ct2/show/NCT03507452

First-in-human Study of BAY2287411 Injection, a Thorium-227 Labeled Antibody-chelator Conjugate, in Patients With Tumors Known to Express Mesothelin

So I enjoyed the weekend and worked in the garden this always takes my mind off of my problems-

At last Mesothelioma has had a drug passed by Nice. While Covid 19 has spoilt things they have allowed. Not for me as I have had Immunotherapy but Im so happy for all the Mesowarriors in NHS England

Monday I was in a Zoom meeting in The West Midlands Support Group with Sophie Philips. That was really a great time and a lovely group. We went overtime as we were having fun.

I love this way of talking to people as we would have had to have got up very early and paid a fortune on train fares or stayed in a hotel. It really is the good thing that has come out of this strange year.

A very interesting Artical I wish to high light we need to know we are keeping safe from this virus

We know that by wearing masks, we can help reduce the transmission of COVID-19, and we know that not every type of face mask is equally good at blocking viral droplets when we cough, sneeze, talk – or even simply breathe. But how can we really know for sure?

https://www.sciencealert.com/simple-low-cost-experiment-reveals-which-face-masks-are-best-at-blocking-droplets/amp?fbclid=IwAR3FQZ15uvlPGmPvC0jexlBhd2RhKxNs21Qmo26pzmpM9bQdc3YKJiJ08TU 

We had to go to Curries yesterday to buy a new telly and as we can go in shops now I thought we would give it a try.

We joined a queue making sure we were standing on a mark and put our masks on,

We had to wait for people to come out that created room for us. We went around the one way system and chose our TV, The assistant came up and we paid with our card and had to arrange delivery for today. This is the new norm but I said what about winter as I dont fancy standing outside on a wet cold day.

He was that they will have more staff by then as there is only 6 on now.

Came out and other people had torn their masks off and threw them on the ground. There is a waste bin there –Why are people so lazy ??

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