A Diary Of A #Mesowarrior living with #Mesothelioma #Asbestos — Today The Foundations Name Flies High in a Spitfire
Gosh it has been so hot yesterday but it is great to be having a summer.
Well today is Aug 1st and we are out of lock down hooray !! but now the figures are going back up, or so they say, so I will still stay away from towns and walk in the country.
It has been so great Zooming with everyone and being included in so many meetings I did 4 on Wednesday I would never have travelled to so many so this zooming is great,
Today a Spitfire is flying over all the NHS Hospitals and Royds Withy King have given me a surprise of donating and putting my name in the plane. That was a wonderful surprise but they are always doing wonderful things to make me smile.
I have made so many friends on my journey. RWK have supported me throughout making large donations to the Mavis Nye Foundation which I cant thank them enough but there is always a parcel on my doorstep be it flowers or wine etc to cheer me up on my bad days and they have really raised my spirits this time as my trial has been taken away from me and there is this gap before finding another one. I needed cheering bless Helen Childs and her team
Here is the the NHS Spitfire Route for Sat 1st August 2020
1. 11.00am – Duxford Airfield (Take-off)
2. 11.15am – Southend University Hospital NHS
3. 11.20am – Medway Maritime Hospital NHS
4. 11.27am – Kent and Canterbury Hospital NHS
5. 11.32am – Queen Elizabeth The Queen Mother Hospital NHS – Margate
6. 11.37am – Buckland Hospital NHS – Dover
7. 11.42am – Royal Victoria Hospital NHS – Folkestone
8. 11.46am – William Harvey Ashford Hospital NHS
9. 11.55am – Conquest Hospital NHS – Hastings
10. 12.00pm – Bexhill Hospital NHS
11. 12.05pm – Eastbourne District General Hospital NHS
12. 12.10pm – Brighton General & Royal Sussex County Hospital NHS
13. 12.18pm – Worthing Hospital NHS
14. 12.25pm – Bognor Regis War Memorial Hospital NHS
15. 12.29pm – St Richard’s Hospital NHS – Chichester
16. 12.30pm – Goodwood Aerodrome (Land)
Short Break
1. 3.00pm – Goodwood Aerodrome (Take-off)
2. 3.05pm – Queen Alexandra Hospital NHS – Portsmouth
3. 3.10pm – St Mary’s Hospital NHS – Newport, Isle of Wight
4. 3.20pm – Poole Hospital NHS
5. 3.25pm – Royal Bournemouth and Christchurch Hospitals NHS
6. 3.32pm – University Hospital Southampton NHS
7. 3.47pm – Salisbury District Hospital NHS
8. 3.55pm – Royal Hampshire County Hospital NHS – Winchester
9. 4.00pm – Basingstoke and North Hampshire Hospital NHS
10. 4.05pm – Frimley Park Hospital NHS
11. 4.10pm – Royal Berkshire Hospital NHS – Reading
12. 4.18pm – Amersham Hospital NHS
13. 4.26pm – Oxford University Hospitals NHS
14. 4.30pm – Watford General Hospital NHS
15. 4.40pm – Duxford Airfield (Land)
The Foundation has had a lot of publicity as we have set aside 2 years of funding a Mesothelioma UK Nurse and the icing on the cake was Toni Fleming accepting the post. She is my Clinical Nurse at Kent and Canterbury and has been with me since my diagnosis 2009.
TONI Fleming has been appointed as a new Mesothelioma UK Clinical Nurse Specialist for East Kent Hospitals University NHS Foundation Trust. She will be based at Kent and Canterbury Hospital and will be supporting mesothelioma patients across the East Kent region with their treatment and care.
Mesothelioma is a cancer related to exposure to asbestos and predominantly affects the lining of the lungs. The UK has the highest incidence of the disease in the world with around 2,700 people diagnosed each year.
Toni will be working alongside Mesothelioma UK Clinical Nurse Specialist, Louise Gilham in Kent. The new role will be fully-funded by the Mavis Nye Foundation for the first two years. The Mavis Nye Foundation was set up three years ago by Mavis Nye, the longest-living mesothelioma patient in the UK and a patient advocate for Mesothelioma UK.
Toni Fleming has been a Lung Cancer Nurse Specialist since 2004 and a General Nurse since 1995. She has worked in lung cancer and palliative care throughout her career.
Commenting on her new role, Toni said:
“East Kent has a particularly high proportion of mesothelioma patients so I’m delighted to be working with Louise and the wider Mesothelioma UK team to support our patient community. I’ve been working with Mavis since her initial diagnosis and the support of her Foundation and donors has been critical in establishing this new role.”
New asbestos-related cancer nurse specialist appointed for East Kent
Then I played a part in Cancer 52 Film which has been a great success and I hope patients will not be scared to go to hospitals. They are making sure we keep safe. I have been tested for Covid-19 on every visit to the Royal Marsden
Today starts IOSH campaign for Occupational Cancers so I get involve as i always have done.
So its been a busy Month with many ups and downs.
Please keep safe
https://www.mavisnyefoundation.com/my-donate-page.html
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