A Diary of a Mesowarrior Living With #Mesothelioma #asbestos –Action Mesothelioma Day and The Launch of Cancer 52 Film.

My next stop was Zoom for the June Hancock meet

 

I have left writing for to long and now there is a long story to tell.

Last Friday was Action Mesothelioma Day which every year we usually travel too. This year isn’t normal so it had to take place on social media only. We all were a little hesitant at this but in the end it worked out really well. I was able to visit three groups. I would never have done this if I had to travel.

First it was Mesothelioma Alliance 2020 who kicked off the day. i belong to this group and was involved in the meetings which was really interesting to help bring such a big event togather. Zoom meetings have played a huge part this year. I also had pre recorded a speech for the event with my Mesobuddy Paul Cook of Erase Meso. we have really come together to work.

I then joined LASAG and their meeting

 

My next stop was Zoom for the June Hancock meet which was very interesting especial Adrian Dobbs who gave a fascinating insight to Mesothelioma research.

After the weekend Monday was a Zoom meeting with Mesothelioma Uk and the a Zoom meeting with Paul Cook to discus AMD 2021 there is no let up straight into planning a bigger and better day for next year.

Then A zoom meeting with Cancer 52 as a fim I had taken part in was going to be Launched on Thursday.

Ray had video me for 2 days here at home with the director on the phone making sure I told my story of my experience of visiting hospital for treatment. So many patients are not attending for fear of the Coronavirus

Cancer care was disrupted during the initial days of the Covid-19 pandemic but now services are up and running. But cancer patients are worried about attending. So Cancer52 has created a video Cancer patients talk about their care to encourage patients to attend treatments.

The video has been made with the help of Cancer52 member charities who have put forward patients who have had treatment during the pandemic.

.https://vimeo.com/436380998?ref=fb-share&fbclid=IwAR1VJD4fbtd8IJ6F5Y6Cm-ywSVa82znhjwPTAP07GUJfg0C8a7Vx4ac544o 

 

 

 

 

Click on the link

So it has been a very interesting time and Monday is scan day at the Marsden and Im so nervous. I hope the treatment has kicked in and that there isn’t anymore growth.

We have been decorating so as to keep our minds from thinking to much.

 

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