A Diary of a Mesowarrior Living With Mesothelioma #mesothelioma #asbestos — Life is Whirl of appointments

 

 

 

 

 

 

I feel so naughty as I haven’t written a blog since my birthday.

My life is now taken over by the HYPER trial Only at the Marsden And only for the patient that has pembro rechallenge that has stopped as it is a trial to kick Keytruda back into action https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-of-pembrolizumab-and-a-new-drug-called-guadecitabine-for-people-with-solid-tumours-hyper.

The first week is travel each day to the Marsden

 

 

 

 

 

Monday is for blood to be taken to know you can have the drug.

Tuesday Wednesday Thursday Friday is the drug.

Then the next week is Bloods on a Tuesday Thursday

Then the next week is blood on a Tuesday.

Then the next round of a week of the drug

Bi-Ops and Ct scans are also put in the diary.

It is really very hard to fit time for yourself in.

On top of this, the dosage is very high and no one has tolerated the high dose yet.

My blood was playing up so the Doctor stopped my injections that week. Then the same again the next week. This put my diary out and I couldn’t go to IOSH or Contamination Expo. I was so upset but the Doc said its either your Talking or the trial.

I did sneak in my talk to MSD at the British Museum with Ray. My sense of humor was still there as we made everyone laugh.

I began to stop opening my bowels and then my bladder stopped. So much pain I couldn’t get out of bed one day.

I took my 8 packets of Movocol —-nothing. Then on the Friday nature worked in one explosion.

 

 

 

 

 

 

 

 

 

I was back to normal and so was my bladder. A sigh of relief.

So Monday blood back to normal I have had a week of the drug.

We get up at 5pm and travel to the Marsden 8.30 I receive the drug and then I find Ray asleep and we travel home.

I’m back indoors by 11.30. So that is OK.

We did sneak a trip to London to Soho to the Launch of 12Kings Bench wonderful book

1st Edition Practice Area: Damages, Dispute Resolution, Tort
ISBN: 9780414071698
Published by: Sweet & Maxwell
General Editors:Harry Steinberg QC; Michael Rawlinson QC; James Beeton
sweetandmaxwell.co.uk/Catalogue/ProductDetails.aspx…… #asbestos #mesothelioma

 

 

 

 

 

 

 

 

 

Sweet & Maxwell to publish a book on asbestos claims written by 12KBW barristers
6 Aug 2019
On 22 August 2019, Sweet & Maxwell will publish the first edition of Asbestos: Law & Litigation. The book is a comprehensive guide to the legal and practical aspects of claims for asbestos-related injury in the UK. It includes contributions from Dr Robin Rudd and Dr John Moore-Gillon, Master Eastman, and specialist barristers in 12KBW’s Asbestos Team. The book covers the history and use of asbestos, the asbestos diseases, the common law and statutory duties relevant to civil claims, and attendant issues relating to insurance, limitation, assessment of damages, state payment schemes, and procedure.
The general editors are Harry Steinberg QC, Michael Rawlinson QC, and James Beeton, all of whom are barristers at 12KBW.

https://www.sweetandmaxwell.co.uk/Catalogue/ProductDetails.aspx?productid=42638802&recordid=9925 

I have a copy of the book which I will read on all these visits to the Marsden.

We also have had so many events going on which I will write about separately people deserve a huge thank you for all the hard work running swimming and even playing Pool.

Tomorrow we are at Worthing to back a lovely mesowarrior who lost her father and is running with a team for Mavis Nye Foundation Great it’s on a Saturday I knew I wouldn’t be at the Marsden.

Monday I have a Scan

Tuesday Ray has a MRI

Wednesday I have a Bi-Op and so it goes on. This had better work. Time will tell.

 

 

 

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