A Diary of a Mesowarrior Living With #Mesothelioma #asbestos — We have a Mesowarior of 19 years old why so young ????

 

 

 

 

 

 

 

 

 

Kirsty and Amie x

There is a worrying trend of young people showing Mesothelioma. Why?? it has me searching for answers and I found a report from 2013.

So many are being contaminated at school or DIY But we have now two 19 year olds. WHY??

This must be ringing alarm bells !! if not why not.

They tend to be Peritoneal at this young age, so they have to go through a horrendous operation where they lose so much of their stomach area.

Cruelly they have to have a hysterectomy, saving their eggs for when they might like to try for a baby, if they are lucky to be able to save their ovaries, or they have to think of a surrogate but that is in the future.

As one mother has told me :-  They removed 100% visible cancer (full hysterectomy) and did the hipec wash. It was the best news we could have hoped for. Now just waiting to see if they intend doing a course of chemo as a precaution as cancer was aggressive. Consultant said her life expectancy should be the same as anyone else with results from surgery. Had to sacrifice a lot along the way but she is here to tell the story and that’s all that matters. Basingstoke were amazing but I am just so thankful to the gp for finding the problem and fast tracking her. The nhs have been amazing. Basingstoke said to us they are not 10O% peritoneal one is caused by asbestos but have no proof either way so it’s just presumed it is. It came as a massive shock as her only symptom was a little bloating but only what you’d expect of a girl this age with rubbish periods. So scary what you can be walking around with not knowing anything is wrong xxx

That is horrendous for a family to have to go through.

We had the awful case of Mesowarrior Kirsty List.

We were so close and messaged all through her illness. We talked about a memory box for her little girl where she did buy one and put things into it for he little girl to look through when Mummy wasn’t around anymore.

“Everything revolves around my daughter. It’s that simple.”
“She’s five and she’s dealing with everything that I’m going through like an absolute champion.”

But she shouldn’t have had to go through it. Why wasn’t something done about Asbestos in those early days when the Governments knew. That’s a question I aske time and time again.

https://www.mirror.co.uk/news/uk-news/mum-dying-asbestos-related-disease-9763451

Kirsty, who has a five-year-old daughter, Aimee, was diagnosed with mesothelioma – a cancer of the lining of the body’s organs – after she began feeling unwell in September 2015.
She was initially diagnosed with gallstones but doctors discovered a tumour around her gallbladder when they attempted to remove her gallbladder during surgery.

There was a report in 2013 https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/315919/vulnerability_of_children_to_asbestos.pdf

That said. In terms of lifetime risk of developing mesothelioma, it is well recognised that the
younger a person is when they are exposed, the greater the risk of developing
mesothelioma, which reflects the latency of the disease as younger people are more
likely to live long enough for the disease to manifest itself. The effect of age of
exposure on the risk could be large, as risk increases

 
Conclusions 

Following our deliberations, we make the following conclusions:
a) Asbestos is classified by IARC as a group 1 carcinogen, i.e. it is carcinogenic to
humans. Asbestos causes mesothelioma, and cancer of the lung, larynx, and ovary.
In their recent evaluation, IARC also considered that there is evidence (in some
cases limited) in humans for positive associations between exposure to asbestos
and cancer of the pharynx, stomach and colorectum.
b) In general terms, the levels of respirable asbestos fibres in air range from lowest
to highest in the following order:
• background outdoor ambient levels (lowest levels)
• background indoor ambient levels in buildings not built with asbestos
• levels in buildings built with asbestos where the asbestos is in good condition
• levels in buildings built with asbestos where the asbestos has been disturbed
or damaged and/or is in bad condition (highest levels)
c) The data in general suggest that the levels of asbestos found in schools with no
asbestos in their construction are of the same order of magnitude as indoor asbestos
levels in other buildings. When asbestos is present and is disturbed or damaged, the
data indicate that exposure to asbestos fibres can increase. However, the
information on levels found in schools is largely historical and there is a lack of
contemporary data on asbestos in schools. In view of the importance of this issue,
there would be a benefit in generating new exposure data.
d) There is also potential for children to be exposed to asbestos in their home
environment in homes where asbestos-containing products (ACPs) were used in
their construction. In general, the reported levels of asbestos found in traditionally
built houses and flats are of the same order of magnitude as ambient indoor levels.
However, activities such as maintenance can disturb asbestos and increase
exposure both at home and at school.
e) From an epidemiological perspective, there is good evidence that childhood
exposure to asbestos can cause mesothelioma in later life. However, the
epidemiological data are too limited to assess differential susceptibility between
children and adults. We recognise the effect of increased life expectancy of children
compared to adults and the increased likelihood of mesothelioma as a result of the
long latency period for this cancer. Because of differences in life expectancy, for a
given dose of asbestos, the lifetime risk of developing mesothelioma is predicted to
be about 3.5 times greater for a child first exposed to asbestos at age 5 compared to
an adult first exposed at age 25 and about 5 times greater when compared to an
adult first exposed at age
There are respiratory and immunological differences between adults and children
but their impact on the susceptibility of children to asbestos-induced cancer is
unclear. We were informed that the juvenile lung is particularly susceptible to injury
obstruction, would remain for life. However, it is not possible to determine what effect
fibre inhalation before the age of 5 would have on lung function, and whether any
effect would persist. Some physiological differences (e.g. respiratory rates, total
volume, and airway dimension) have the potential to modify the susceptibility of
children compared to adults to asbestos. However, modelling of fibre deposition in
children has indicated that children are unlikely to inhale more fibres than adults.
While the available relevant animal study provides data on age-related
susceptibility to asbestos in rodents, it does not offer any significant insight into the
relative vulnerability of children compared to adults to asbestos.
From the available data, it is not possible to say that children are intrinsically more
susceptible to asbestos-related injury. However, it is well recognised by this
Committee that, due to the increased life expectancy of children compared to adults,
there is an increased lifetime risk of mesothelioma as a result of the long latency
period of the disease. In reaching our conclusion and taking into consideration that
there are a number of uncertainties and data gaps, we conclude that exposure of
children to asbestos is likely to render them more vulnerable to developing
mesothelioma than exposure of adults to an equivalent asbestos dose.

Please read the report it is an eye opener —- The Committee on Carcinogenicity of Chemicals in Food, Consumer Products and the Environment (COC) prepared this statement in response to a request from the Department for Education (DfE). The statement sets out the committee’s views on the relative vulnerability of children to asbestos, and it informed the discussions of the independent Asbestos in Schools Steering Group.
Published 1 July 2013 https://www.gov.uk/government/publications/relative-vulnerability-of-children-to-asbestos-compared-to-adults

 

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