A Mesowarriors Diary Living With #Mesothelioma #Asbestos – A talk at a great support group in Watford Junction

With snow all gone we thought we would have a free from trouble journey to The Stanborough Conference Centre Watford Junction.

We got on the fast train and it pulled up into Whitstable but they change drivers and our new driver was late. We sat there waiting for him to arrive so we could travel onwards.

We were amazed to see the snow still in the fields in places.

Arriving at St Pancras and then a walk to Euston where a train was ready to take us to Watford Junction. I had taken hours planning the journey and they don’t say on google directions that every train goes to Watford Junction.

We were a little early so was sat at the station and had a coffee talking to a woman on the other table about the women tottering along in such high heels.

We carried on in a taxi and arrived at the venue but it was so funny she arrived just after us as she was waiting for a lift.

Gradually everyone arrived and they were a wonderful friendly group. We all got on so well nattering away.

A little squirrel came to the window he was after food in the bin.

The meeting started with exercises which was great to loosing us up and they were then ready for me to do my talk.

I couldn’t have done a better one as I  spoke of cancer survival. As a lovely man pointed out we are all survivors. Fear of recurrence is common amongst cancer survivors. As the year passes without the disease showing in the scans, the thought of recurrence is always with you.

You worry that every ache or pain thinking it is a sign of your cancer recurring.  These fears do fade, though they may never go away completely and each scan I get worked up that the Meso will be staring us back in our face again. I sometime think Mr Nasty will be there waving at us Mr Nasty.
So many Mesowarriors have died in the 9 years of my journey so many friends and their family have contacted me and we shared our journeys together. They have passed and left me behind. I Try not to feel guilty about my feelings or ignore them in hopes that they’ll go away I, acknowledge those fears. I Take control of those fears and I do what I can to influence my future health. and to help others. I want the Mesowarriors to survive but I keep having to light our candle. That breaks my heart.

I made Ray stand up and talk about being a carer and what his life was like. We had people laughing between us the atmosphere was just great.

I was presented with flowers and chocolates which was very sweet of them

I was a bit lost so I used notes as I haven’t done that for a long time. They didn’t have anywhere to show my presentation.

I even met a Mesowarrior who is a friend of mine on Facebook so it was great to meet up.

Thank you everyone that was there and Linda Charalambous Lung Cancer Clinical Nurse Specialist  We had a great time you are running a great group. Thank you so much for the flowers and chocolates.

 

 

 

 

 

 

 

 

So we said our goodbyes and had a lift to the Station where a train was waiting and we were on our way.

But at St Pancras a Train was cancelled so we had 2 trains in one it was packed. We were crammed in at the door as there was no chance of a seat.

The driver told us that it was due to the trains being pulled into the workshops to men them as they had been damaged in the snow days last week.

Then they announced that Following damage to a number of trains caused by the snow and icy conditions last week, some trains are cancelled and other trains may have fewer coaches today trains with 12 coaches will be only 4 today. We’re sorry for the inconvenience and are working hard to repair the trains as quickly as possible. I don’t envy the travellers today in rush hour.

We were so pleased to get home and have dinner but it had been a wonderful day.

 

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