A Diary Of A Mesowarrior #mesothelioma #asbestos — Talking about the confirm trial and News of A Annual Asbestos Seminar on 21 March 2018 at the Barbican Centre.
Today was the Telephone Confirm Trial meeting. I love taking part as it good to hear how the trial is going. I can put Mesowarriors questions to the board and get answers for them. It makes us all feel so involved. We must back trials as it is the only way to find treatment for our Mesothelioma.
It was great news to know the trial is opening in so many hospitals. Please talk to your Oncologist and make sure you are passed to the trial team.
This a phase 3 trial. The researchers need 336 (this figure has changed as many patients are in the trial now)
It is a randomised trial. You are put into 1 of 2 groups by a computer. Neither you or your doctor can choose which group you are in. And neither you or your doctor will know which group you are in. This is called a double blinded trial. The groups are:
nivolumab
a dummy drug (placebo )
2 out of 3 people will be in the nivolumab group.
You have nivolumab, or the dummy drug, as a drip into a vein every 2 weeks. You have it over 30 minutes.
You continue treatment for up to a year unless the side effects are too bad or the mesothelioma comes back.
Quality of life
You fill in a questionnaire when you agree to take part and again when you start treatment and then during treatment at:
6 weeks
12 weeks
Then when you finish treatment you complete a questionnaire after:
1 month
6 months
1 year
The questions ask about how you feel and any side effects you might have. This is called a quality of life questionnaire.
Samples
The researchers will ask for a sample of your cancer that was removed when you had surgery or a biopsy . You will need to have a biopsy if this isn’t available.
Blood samples for the trial will be taken when you have blood tests as part of your routine care.
Please take the plunge you have nothing to lose.
Great news for March is that 12KBW have the Annual Conference where Ray and I will be giving a short speech about the MNFoundation.
We are delighted to announce our Annual Asbestos Seminar on 21 March 2018 at the Barbican Centre.
The seminar will be chaired by Harry Steinberg QC with talks from 2pm to 6pm and will be followed by a drinks reception.
Members of our team have continued to act in the leading cases, including Bussey v Anglia Heating Ltd, in which Michael Rawlinson QC and Gemma Scott presented a challenge to the decision of the Court of Appeal in Williams v University of Birmingham.
https://mailchi.mp/37ca8c21ae09/12kbw-annual-asbestos-seminar?e=8242ff64ec
We have now confirmed our full line-up of talks and speakers:
2.00 – 2.10
Welcome and introduction from Harry Steinberg QC
Session 1
2.10 – 2.30
Bussey – an update with Gemma Scott
2.30 – 2.50
Implications for asbestos litigation and low-level exposure, Michael Rawlinson QC
2.50 – 3.10
Women and asbestos, Aliyah Akram
3.10 – 3.20
Mavis Nye, an update on the Foundation
Session 2
3.40 – 4.10
Panel discussion, chaired by Andrew Hogarth QC with Kate Boakes, James Beeton and David Green
4.10 – 4.30
Limitation issues for asbestos lawyers, Patrick Kerr
4.30 – 4.50
Lost years claims, Steven Snowden QC
Session 3
5.10 – 5.30
Recent quantum cases, Michael Brace
5.30 – 5.50
Immunotherapy & ethics, Niall Maclean
5.50 – 6.00
Q&A and closing
There are still places remaining for this seminar; if you, or any of your colleagues, would like to attend .
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